The consumer-genomics company 23andMe just sold its biobank of customer genetic data to drugmaker Regeneron for $256 million.
Regeneron is to pay $256 million in cash to acquire “substantially all” of 23andMe’s assets, including its massive biobank of around 15 million customer genetic samples and data.
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A place to discuss privacy and freedom in the digital world.
Privacy has become a very important issue in modern society, with companies and governments constantly abusing their power, more and more people are waking up to the importance of digital privacy.
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The future is not evenly distributed.
Were you working with data back then? Marketing? You want to argue that there was the same public knowledge around digital data in 2005 (when web 2.0 was in its infancy) as there is now in 2025? Most books I’ve read on the topic weren’t even published till the late 2010’s. Surely there was a moment or experience that woke you up to the importance of privacy and the capabilities of data. Not everyone has had experiences like that, even today.
I’m not dismissing personal responsibility, I was just shocked that the dominant, first reaction was “morons” and not “these companies are immoral, and don’t deserve our trust.” I want privacy as the default and not an overwhelmingly individual arms race against corporations and professionals. The latter is going to lose, and that will hurt the rest of us. If we want the former, as a community we have to get off our high horse, get on the ground, and grow by welcoming those that got burned into the fold. edit: grammer