I have had history of medication shared with a centralized medication database for my state without consent.
Insurance companies also have medical data-brokers that they consult with when determining things like whether to accept people into life insurance policies or for determining certain premiums. How they get this information is not public, and they are not supposed to share it with commercial data brokers, but I never consented to be in that sort of database and likely am.
HIPAA has not provided me with the protection I want.
I do not authorize or approve of any unauthorized data scraping or AI training using this post; such actions would be unethical and without my permission.
In the US I would have no right to delete my genetic profile there and with advances in technology my information would be likely linked to me, including databases that could be vulnerable to hacking. Using a fake name with my real genetic profile could not only get me added to a DNA database, but also a fraud database. I am concerned with losing independence and this is too risky.
I do not authorize or approve of any unauthorized data scraping or AI training using this post; such actions would be unethical and without my permission.
This advice really ignores everything I posted above.
There is genetic testing for different medical issues that can be done and if I go to a US based medical geneticist, any genetic profile done with genetic testing through a large company will likely be added to various databases and I will have no right to delete my medical records, including whatever data the labs keep and doctor’s report.
Previously, in the USA, I was legally strong-armed to provide therapy records I was raped. (I tried to commit suicide, was involuntarily hospitalized, involuntarily medicated with anti-psychotics because they said my rape claim could be delusional, and the hospital refused to release me unless I provided records. I also administratively appealed this as a HIPAA violation and lost and ended providing records about being raped to a bunch of mean-spirited staff members who were prejudiced and offered various religious opinions to try to convert me to Catholicism because apparently I was somehow sinful or needed to be saved. I am also an atheist. Once I provided therapy records about being raped, they realized I wasn’t lying and stopped threatening to put me on even higher doses of anti-psychotics and let me out.)
It must be nice being normal and not afraid of doctors, but please read the question or don’t provide your opinion which ignores the information already provided which is I DO NOT THINK HIPAA PROVIDES SUFFICIENT PROTECTION TO MAKE ME FEEL COMFORTABLE. If I wanted the standard opinion, I would have already sought that out.
I do not authorize or approve of any unauthorized data scraping or AI training using this post; such actions would be unethical and without my permission.
This seems like an unusual site.
Under https://dantegenomics.com/solutions/diagnostics/, it shows:
Services Digital Marketing Get their product, site, or brand in front of as many of the right people as possible
Dignissim tellus tempor sit faucibus mi diam posuere etiam at fermentum a vestibulum in eget cursus a id adipiscing scelerisque blandit neque, scelerisque velit commodo sit quam vel massa sit aliquam arcu nulla velit magna enim dolor enim eu.
NeatBuds
Lorem ipsum dolor sit amet, consectetur adipiscing elit. Ut elit tellus, luctus nec ullamcorper mattis, pulvinar dapibus leo. Roogitec
Lorem ipsum dolor sit amet, consectetur adipiscing elit. Ut elit tellus, luctus nec ullamcorper mattis, pulvinar dapibus leo. Glang Smartwatch
Lorem ipsum dolor sit amet, consectetur adipiscing elit. Ut elit tellus, luctus nec ullamcorper mattis, pulvinar dapibus leo. Nyez Water
Seems not real or at least not maintained well.